You can join in with an organised fundraising events and raise funds for us.
Please ensure you let the team know you are fundraising for the Lupus Trust.
World Lupus Federation Global Survey Finds 91% of People with Lupus Report Using Oral Steroids to Treat Lupus
Prominent Hong Kong actress Kathy Chow has died
Kathy Chow a prominent Hong Kong actress, singer and producer has died suddenly aged 57. Kathy is know to have had Systemic Lupus Erythematosus for several years.
Kathy was a leading Hong Kong acting star of the 1990s. She was best known for her role as Zhou Zhiruo in the 1994 TVB series The Heaven Sword And Dragon Saber. Her last film role was on 2021 action comedy, “Heroes Return,” directed by Yip Wing-kin. Kathy was lead actor and producer.
According to Chinese news site St Headline, Kathy was diagnosed with systemic lupus erythematosus. Her condition was not publicly revealed, so only a few people knew the reason why the actress could not move easily.
Her mother said she wishes her daughter will “stay happy in another world, your family is proud of you.”
Jayden wins Young Hero award after saving mums life
The ‘Who Cares Wins Awards’ takes place each year to celebrate healthcare heroes from the frontline NHS staff to the ordinary people who go above and beyond.
Jayden, aged 12, was revealed as the 2022 winner of the Young Hero award, after saving the life of her mum, Natasha, who suffers from Lupus and heart failure.
Philip Young takes on 52 half marathons for lupus research
Twin Peaks singer Julee Cruise dies battling lupus
American musician, singer, songwriter and actress Julee Cruise has died at the age of 65.
She appeared as a character in Twin Peaks, singing in the town’s bar, and in its movie spin-off Twin Peaks: Fire Walk With Me. She also featured in Twin Peaks: The Return, Lynch’s third season of the show, in 2017. Twin Peaks creator David Lynch has paid tribute to Julee, who recorded the TV show's haunting theme, as "a great musician, a great singer and a great human being".
On 28 March 2018 Julee announced on her Facebook page that she had systemic lupus, which caused her considerable pain and affected her ability to walk and stand.
Her husband, Edward Grinnan, wrote on Facebook: “She left this realm on her own terms. No regrets. She is at peace … I played her [B-52’s song] Roam during her transition. Now she will roam forever. Rest in peace, my love.”
Lucy in the Sky with Diamonds competition!
Scientists find a genetic cause of lupus
Nick Cannon on the ten year anniversary of his lupus diagnosis
Coronavirus (COVID-19)
Emma-Jayne crowned Miss Voluptuous UK Ambassador
Lupus research hero Dr. Marc Chevrier passes away
Laps for Lupus
Global Survey Finds Lupus Greatly Impacts Physical Function and Quality of Life
In a new global survey of more than 3,500 people with lupus released by the World Lupus Federation (WLF) for World Lupus Day,, nearly 7 in 10 participants responded that lupus hampers their mobility. The majority of survey respondents also reported they are limited from doing daily activities because of lupus, including limitations going up and down stairs (67%) and doing chores (69%) such as vacuuming or yard work.
FDA grant fast-track designation to potential new treatment for lupus
Beware the Coronavirus scams
In times of crisis some people will still take the opportunity to con people which is the lowest of the low. People are desperately searching for information and some of the information that they would normally question or filter out might not currently happen as we're uncertain about facts at the moment.
Artist Sheena Rose diagnosed with lupus
Gangsta Manga creator Kohske diagnosed with lupus
Gangsta. manga creator Kohske revealed on their Twitter account that they have been diagnosed with systemic lupus erythematosus.
Lina Ben Mhenni, Tunisian Free Expression Activist and Revolutionary loses her battle with lupus
Tributes are pouring in after prominent Tunisian human rights activist and blogger Lina Ben Mhenni, one of the heroes of the 2011 revolution, died in the early hours of Monday from lupus.
