LUPUS RELATED NEWS & UPDATES
Latest news from the Lupus Trust
I’ve had lupus for about 30 years and this is personally what I wish people knew.
It’s incurable and chronic. Just because you see us out and about doesn’t mean we’re ‘better’ or ‘cured’. We have some days that the pain level is tolerable and some days where it isn’t so we take have to take full advantage of the days we can function at all.
Tracy Shearin-Drayton, a preschool teacher and mom from Greensboro, North Carolina, thought she'd have to wait five to eight years to get a kidney transplant. Shearin-Drayton was diagnosed with Lupus in 2009, and in August, she made public plea for a kidney donation, sharing her story with local news station WFMY.
Based on emerging new evidence and expert consensus, a task force put together by the European League Against Rheumatism (EULAR) released updated recommendations for the management of systemic lupus erythematosus (SLE). This report was published in Annals of the Rheumatic Diseases.
The investigators performed a systematic review of studies focused on treatment strategies for the management of SLE published between January 2007 and December 2017. Recommendations for 4 broad categories were developed following the modified Delphi method, in which the task force devised related questions, elicited expert opinions, and reached consensus.
When you get a diagnosis of lupus you naturally want to learn all you can about it and generally it’s easy enough to get lists of symptoms from reputable and trustworthy sources so that’s all fine. However there are some things that you might have experienced that no-one mentioned and were left thinking ‘what the heck’?!
