Welcome to Lupus Trust
Official Support and Information
A resource for patients, carers, medical professionals and fundraisers.
In 1991 the Lupus Trust (previously St Thomas Lupus Trust) was set up to fund vital research into lupus and provide information on lupus. Since then, we have worked tirelessly with nursing staff, clinical research teams, patients and those who care for friends or family with Lupus. You can learn more about our background here.
Our aim is simple - we ultimately want to find a cure and in the meantime advance the treatment of lupus. We do our best to ensure factual information is shared around the world and that there is an understanding over the difficulties and often life changing circumstances that affect people with lupus.
Our online resource and community should provide many useful and interesting answers, however if you require more information or think we could benefit from additional content on this website, please contact us.
The Latest Lupus Trust News
Miss Jamaica Universe 2014 finalist, Zandrea Bailey, who died on Sunday (aged 29) after a long battle with lupus, has been hailed for her beauty, dynamism and breathtaking smile.
Amaka Ejibe who is part of the Lupus Research Team at Guys Hospital reminds us of the importance of smear tests with her own personal story.
For many lupus patients, wintertime is particularly chilling.
That’s because they also suffer from the painful disorder known as Raynaud’s phenomenon (also known as Raynaud’s syndrome or disease).
Do you have a friend or family member with a chronic illness and you’d like to get them a Christmas gift that will really be of use to them? Here’s a few ideas…..
Some things that might trigger a flare: divorce, bereavement, virus and Christmas!! Yes Christmas, a wonderful but potentially very stressful time of year.
Lupus is unpredictable and can interfere with our lives, stopping us doing everything that we want to and that includes participating in Christmas celebrations.
So let’s look at a few Christmas hacks so you can participate in Christmas!
People don't understand when I reel back in horror if they cough or sneeze, but when you have lupus, you are at increased risk for all kinds of infections.
I guess you could call me one of the lucky ones. I’ve been extremely fortunate in my life in many ways. For today, two of those instances are the facts that I’ve lived in many different places and that I’ve always known about lupus.
Actor Kazy Tauginas kindly agreed to head up our Awareness Month Campaign for 2018. Kazy is currently appearing in the film Equalizer 2 with Denzel Washington, but has played many tv and film parts. He also writes his own scripts, including ‘Standing Eight’ about a boxer that develops lupus.
I’m sure you’ve read the fact that the majority of lupus patients are between 15 and 45. This is correct, but lupus can develop at any age and can affect men and children too. Doctors may dismiss lupus if the patient falls outside the 15 to 45 age range and this may lead to even further misdiagnosis.