I often ask people what is the worst thing about having lupus and get varied responses, one response that other people might not expect is ‘I feel guilty’. Even thought we didn’t cause it and can’t control it, we can still sometimes feel guilty about having a chronic illness.
To support patients, care givers and healthcare professionals on World Lupus Day, an expert-led report, ‘A Vision for Lupus’ has today been published to help highlight gaps and inconsistencies in care and areas for action to address the gaps that can often exist for patients and their families living with lupus, a chronic, inflammatory, autoimmune disease that affects approximately five million people globally.
When it comes to virtual reality (VR), most people may think of computer games, but the application of VR is far more than that.
VR is widely applied today in medical services, particularly in pain management. Wearing a headgear equipped with VR technology, patients enter a virtual realm and are immersed in what they see. The experience effectively disperses their brain’s perception of pain, thereby easing the pain.
In 2018 Scarlett Schneider was diagnosed with a rare case of pediatric lupus, which nearly took her life. She recovered after a lengthy stay at Sanford Children’s Hospital in Fargo, the region’s only Children’s Miracle Network Hospital.She amazed doctors with her resilience and sunny disposition in the face of a life-threatening illness. Now she is bringing hope and encouragement to children and families across the country.
Toni Braxton will soon receive an honor that, to her, is just as prestigious as her seven Grammy Awards.
The R&B/pop star will be presented with Lupus LA’s Loop Award for her work on behalf of the organization’s ongoing fight against the autoimmune disease. The presentation will take place during Lupus LA’s 15th annual Orange Ball at the Beverly Wilshire Hotel in Beverly Hills, Calif. on May 4.
The 16th annual observance of World Lupus Day on May 10 will highlight how emotional support helps people with lupus cope with its health effects and on the need for lupus clinical trial volunteers.
World Lupus Day is sponsored by the World Lupus Federation, a global coalition of 200+ lupus patient groups, that seeks to raise awareness of lupus and advocate for more significant funding for lupus research, education and support services for the millions of people worldwide living with the life-threatening, chronic autoimmune disease.
Based on emerging new evidence and expert consensus, a task force put together by the European League Against Rheumatism (EULAR) released updated recommendations for the management of systemic lupus erythematosus (SLE). This report was published in Annals of the Rheumatic Diseases.
The investigators performed a systematic review of studies focused on treatment strategies for the management of SLE published between January 2007 and December 2017. Recommendations for 4 broad categories were developed following the modified Delphi method, in which the task force devised related questions, elicited expert opinions, and reached consensus.
When you get lupus the reality is that you will almost certainly have to make lifestyle changes and one of those may be to your work life. Whether you live to work or work to live a job is an integral part of most people’s life. When lupus strikes it can often prevent people from continuing to work at all.
When you’re having a flare you really don’t want to move much so this might help. You can prepare a flare or bad day box/bag in advance to have ready for when you need things close at hand. The idea is to put everything you might need into the box, include all your favourite things and a few treats.
NBA star DeMar DeRozan brings fans to their feet when he sails through the air and slams the ball through the hoop. The roar of the crowd is deafening, but no one is cheering more loudly than his mother. Diane DeRozan has been her son’s biggest fan since he first stepped onto a basketball court as a grade-schooler.