LUPUS RELATED NEWS & UPDATES
Latest news from the Lupus Trust
It was only after her partner´s death that He Meili realized the full meaning of marriage.
As a lesbian couple in China, He and Li Qin kept their ties largely unspoken, sometimes introducing themselves as cousins. This rarely bothered He until Li succumbed to complications from lupus in 2016, and Li´s parents demanded that He hand over the deed for their apartment and other property documents under Li´s name.
Tracy Shearin-Drayton, a preschool teacher and mom from Greensboro, North Carolina, thought she'd have to wait five to eight years to get a kidney transplant. Shearin-Drayton was diagnosed with Lupus in 2009, and in August, she made public plea for a kidney donation, sharing her story with local news station WFMY.
Carrie Ann said that she only recently learned she had lupus as her doctor forgot to tell her. “It’s so weird," she said. "I was diagnosed with autoimmune six years ago, but my doctor didn’t tell me I had lupus,” she continued. “I was having a colonoscopy and I saw my chart [read] lupus and I was like, ‘This is not my chart,’ and they were like, ‘You have lupus.’”
The launch of China’s first patient-assistance program boosting drug availability for needy patients with systematic lupus erythematosus was announced in Shanghai.
Treatment costs for the disease are high. Annual medical bills for SLE patients in Shanghai last year ranged from 34,000 yuan (£3,843) to 107,000 yuan (£12,100)..
"Many patients are in financial crisis due to the disease and some have to quit taking medication due to the expense,” said Hu Ningning from China Primary Healthcare Foundation.
Season 17 of Keeping Up With The Kardashians airs on Sunday on E! A new promo for season 17 was released on Thursday, which shows Kim Kardashian getting emotional as she has a major health scare. Kim is shown at the doctor's office getting X-rays and testing for lupus.
"I feel this in my bones. I probably have lupus," the 38-year-old reality star tells her mom, Kris Jenner, as she wipes away tears and shots of Kim at the doctor's office flash on the screen.
Cole Moscatel and his wife Kelsea, creators of new luxury, lifestyle platform Snob World, recently donated a generous sum to Lupus LA, a non-profit health organization in Los Angeles. Lupus hits close to home for the couple as Cole was diagnosed with the inflammatory disease six years ago at 15. Since then, he and his wife Kelsea have experienced first-hand the everyday struggles lupus brings.
A Chinese husband was forced to pass up treatment for cancer so that his wife and daughter could both receive the medical care they needed.
Ke Meinan, 42, was diagnosed with stomach cancer in 2015 and his 46-year-old wife Wang Huaying diagnosed with breast cancer a month later.
But when their 16-year-old daughter was diagnosed with the autoimmune disease lupus, the family, from the eastern province of Jiangxi, realised that they could not afford to pay for all three of them to be treated.
When it comes to virtual reality (VR), most people may think of computer games, but the application of VR is far more than that.
VR is widely applied today in medical services, particularly in pain management. Wearing a headgear equipped with VR technology, patients enter a virtual realm and are immersed in what they see. The experience effectively disperses their brain’s perception of pain, thereby easing the pain.
In 2018 Scarlett Schneider was diagnosed with a rare case of pediatric lupus, which nearly took her life. She recovered after a lengthy stay at Sanford Children’s Hospital in Fargo, the region’s only Children’s Miracle Network Hospital.She amazed doctors with her resilience and sunny disposition in the face of a life-threatening illness. Now she is bringing hope and encouragement to children and families across the country.
Toni Braxton will soon receive an honor that, to her, is just as prestigious as her seven Grammy Awards.
The R&B/pop star will be presented with Lupus LA’s Loop Award for her work on behalf of the organization’s ongoing fight against the autoimmune disease. The presentation will take place during Lupus LA’s 15th annual Orange Ball at the Beverly Wilshire Hotel in Beverly Hills, Calif. on May 4.
The 16th annual observance of World Lupus Day on May 10 will highlight how emotional support helps people with lupus cope with its health effects and on the need for lupus clinical trial volunteers.
World Lupus Day is sponsored by the World Lupus Federation, a global coalition of 200+ lupus patient groups, that seeks to raise awareness of lupus and advocate for more significant funding for lupus research, education and support services for the millions of people worldwide living with the life-threatening, chronic autoimmune disease.
Based on emerging new evidence and expert consensus, a task force put together by the European League Against Rheumatism (EULAR) released updated recommendations for the management of systemic lupus erythematosus (SLE). This report was published in Annals of the Rheumatic Diseases.
The investigators performed a systematic review of studies focused on treatment strategies for the management of SLE published between January 2007 and December 2017. Recommendations for 4 broad categories were developed following the modified Delphi method, in which the task force devised related questions, elicited expert opinions, and reached consensus.
