Friday, 30th November, 2007 and my life changed forever. I had not been feeling well for quite a while but kept putting it down to hormone problems and my hysterectomy that I had had a year earlier...
Andrea's Story
My everyday battle with the Wolf (alias SLE), fibromyalgia, arthritis and degeneration in my spine and facet joints. Just a little thing to deal with in life, along with the other less significant problems such as Sjogren’s Syndrome, Antiphospholipid Syndrome, pleuritic pain in the chest due to fluid around the heart, headaches and muzziness.
Aneal's story
My problems began in March 1998 while I was at work. I started with flu like symptoms which progressed to fevers, followed by night sweats. Three visits to the GP and a bunch of antibiotics later, I had not improved at all. In fact, my fevers were spiking higher daily and having been like this for three weeks, something had to be done.
Anna's Story
My lupus story really begins in 2004, despite the fact that I had suffered from other health issues (that may or may not be lupus related) before things went from bad to worse. Things turned sour over Christmas break 2004-2005, I noticed my need for sleep had increased dramatically and I found myself suddenly sleeping all day long.
Anne-Marie's Story
It all started around the age of 17. I would get stiffness in my wrists, which was making driving uncomfortable at times. I thought nothing of it, for the first few months, but then I started to get stiffness and swelling in my knees as well. Being so young, I didn't imagine it to be anything important or worth worrying about, but my mum was concerned about it and she encouraged me to go to the family doctors.
Ann's Story - a warning to us all
I was diagnosed with lupus in 1988 but looking back at some of the things that happened in the years prior to that, it would seem that it’s been around for most of my life. After a couple of years during which I was quite poorly and felt like a walking toothache, our super team at the Louise Coote Lupus Unit sorted me out and got the lupus under control.
Anne's Story
I must start by saying I haven't found it easy to sit and right my story. Putting the last four years down on paper proved to be difficult. For one I didn't want to physically write it ! Frustrated because I haven't quite mastered using the computer, much to the amusement of my 14 year old daughter Grace, whose assistance is unending!
Balbir's Story
Cara's Story
What, How, Why? These are some of the responses I had when I was diagnosed with Lupus at the age of 34, and are many of the questions I have if I tell anyone about 'my Lupus!' It took quite a while for my diagnosis to be confirmed, but in 2008, when it was, OMG - What a Shock!! My husband was fantastic, and still is.
Carlotta's Story
I'm married with two children and I was first diagnosed with Lupus (SLE - systemic lupus erythematosus) in 1995. It all started with a throat infection and joint pains that lasted for several weeks. My doctor referred me to the hospital to see a rheumatologist and I mentioned that my mum had lupus. A test was carried out and it was confirmed within two weeks that I had SLE.
Caroline's story
Hi, my name is Caroline Hill and this is my story. In June 1996 I was a happy, healthy 30 year old woman, I ran a wine bar, had a good life, worked long hard hours and played hard too. I loved water sports, the beach and football. A day out that summer led to my life being totally wrecked, I went to the beach on my day off to go surfing, by 10pm that night I was in my local hospital covered in what looked like a bad case of prickly heat!
Caspar's Story
On 9th September 2006 a little miracle happened - our son Caspar Glemser was born. My name is Maebh (pronounced Maeve) Glemser and I have been a patient at the Louise Coote Lupus Unit since 1998. I was diagnosed with lupus in 1994, although looking back with the benefit of hindsight; I had clearly had the symptoms since 1989.
Clare's Story
"Yes, definitely lupus, lupus erythematosis," said the dermatologist. "This is a sort of auto-allergy but don't worry, it's just your skin. Keep out of the sun and use this cream". Knowing that we were about to go abroad for a couple of years, she added "and don't let those foreign doctors put you on steroids!"
Charlotte's Story
Daisy's story
Duncan's story
Emma's story
Gagan's Story
The Golden Years
Heather's Story
In 1966, when I was in High School, I experienced my first symptoms but diagnosis didn't come till 1983! My initial symptoms of aches and pains, coupled with tiredness, were put down to growing pains and the stress of study. As I was too tired to join in the usual teenage social activities I was isolated from my age group. No one understood the difficulty I had just getting the homework done.