Melissa Joan Hart

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Actor Melissa, internationally known for playing Sabrina the teenage witch, is an Ambassador for Lupus LA.

She explained her support for lupus saying “I had no clue what lupus was. I had just celebrated my wedding and was in the process of making new friends. I became fast friends with my dear friend Kellie Martin and learned that she had lost her only sister to this autoimmune disease. This news absolutely devastated me. All through my life I have thanked God for keeping my family safe and healthy, unable to imagine my life if I was ever to lose one of them. I wanted her to know that I was not only willing to be there for her as a friend, but that I would try to help in any way possible.”

Click here for a video of Melissa talking about lupus and why she supports lupus causes.

Sally Hawkins

Sally Hawkins, an English actress, is the recipient of numerous accolades including a Golden Globe Award and the Silver Bear for Best Actress and has been nominated for two Academy Awards.

Sally appeared in many films including: Star Wars, Godzilla, Paddington, the shape of water, Jane Eyre and Made in Dagenham. Also in TV programmes such as: Casualty, the Hollow Crown and Little Britain.

In 2018 Sally revealed that she has lupus. "I do get quite tired, but I don't let it stop me. I've been very lucky with it, for the most part. It comes in waves. I'm not crippled with it, like some people. I just have to be aware and take it steady."

Eva Ibbotson

The children's author  died on 20th October 2010, at the age of 85 at her home in Newcastle. She was best known for the Amazon adventure tale Journey to the River Sea, winner of the Nestlé children's gold award and shortlisted for the Carnegie medal, and for her funny, magical stories for younger children, including The Secret of Platform 13 and The Great Ghost Rescue.

Although she had battled poor health in latter years and was suffering from lupus, Eva continued to write. The last of her "romps", The Ogre of Oglefort, was published just a few months prior to her death and was shortlisted for the Guardian children's fiction prize and the Roald Dahl funny prize. "The thing you have to do is keep writing, the habit is too ingrained, you can't stop," she said at the time.

Jess Impiazzi

Actress, Author and Reality TV star Jess Impiazzi was diagnosed with lupus in July 2023. Jess’s crippling symptoms started in January, one month after she had her breast implants replaced when one of them ruptured.

She said "My body was just completely failing me and I couldn’t get any answers. I was tired all the time, aching all over and then this angry rash appeared on my chest and face. One day I started coughing up blood, which was incredibly scary. I thought it was stomach cancer. Then I started panicking that it was multiple autoimmune."

Carrie Ann Inaba

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Carrie Ann Inaba is an American television personality, dancer, choreographer, actress, and singer. She is best known for her work on ABC TV's Dancing with the Stars, as Fook Yu in Austin Powers in Goldmember, and as a current co-host of the CBS Daytime talk show, The Talk.

In September 2019 Carrie Ann said that she only recently learned sh had lupus as her doctor forgot to tell her. “It’s so weird," she said. "I was diagnosed with autoimmune six years ago, but my doctor didn’t tell me I had lupus,” she continued. “I was having a colonoscopy and I saw my chart [read] lupus and I was like, ‘This is not my chart,’ and they were like, ‘You have lupus.’”

“So my doctor had forgotten to tell me,” she added.

Read Carrie Ann’s blog the Invisible Warrior.

Michael Jackson

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From CBS News ”It reveals a rare court affidavit detailing several skin conditions that Jackson treats including Jackson’s use of a powerful bleaching cream called Benoquin, because, according to his maid, “he does not like being black and he feels that blacks are not liked as much as people of other races.”

The affidavit also shows that Jackson was diagnosed with vitiligo and discoid lupus, which causes skin blotches”.

Sam Jay

Samaria Johnson better known as Sam Jay, is an American comedian and writer. She is best known as a writer for Saturday Night Live (2017–present), her Netflix comedy special 3 in the Morning (2020), and as the co-creator and co-star of the HBO comedy series PAUSE with Sam Jay (2021–present).

Sam was diagnosed with lupus aged 20, a disease that had mother died from, she says:

“I just got really sick out the blue, and I didn't know what was going on with me., I felt like I had a flu. And then it was like I was incapacitated. I couldn't go from my bed to the bathroom without being out of breath. I couldn't shower. And then I went to the doctor”

Click here for the full interview with Sam talking about lupus and how it affects her.

Robert Wood "Woody" Johnson IV

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Robert Wood "Woody" Johnson IV (born April 12, 1947) is an American businessman, philanthropist, and diplomat who is currently serving as United States Ambassador to the United Kingdom. He is a great-grandson of Robert Wood Johnson I (co-founder of Johnson & Johnson). Alongside his brother, Christopher, he is the owner of the New York Jets of the National Football League.

Johnson became involved in charitable organizations full-time in the 1980s. He is a member of the Council on Foreign Relations. His family has been affected by both lupus and juvenile diabetes, which motivated Johnson to take a role in raising funds to prevent, treat, and cure autoimmune diseases.

He has led efforts on Capitol Hill and at the National Institutes of Health to increase research funding for these diseases and personally contributed to causes related to diabetes, after his daughter, Casey, was diagnosed with the disease. He started a research foundation, the Alliance for Lupus Research, after his daughter Jaime was found to have lupus.


Kristen Johnston

After months of experiencing a ‘mysterious illness’ Third Rock actor Kristen Johnston was diagnosed with lupus myelitis (a type of Lupus that afflicts the spinal cord).

It was only after her official diagnosis that the actress took to Facebook in December 2013 to share with her fans the news and breadth of her symptoms, which included 'full body muscle weakness.'  'I've been really, really sick since early September... Full body muscle weakness to the extent that just walking difficult, stairs impossible and I even need a neck brace to hold my head up,' the actress shared online.

The symptoms became so much that Kristen - who currently stars as divorce attorney Holly Franklin on the TV Land comedy The Exes - was forced to take some time off from her role.

Michael B Jordan

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Michael Bakari Jordan is an American actor. He is known for his film roles as shooting victim Oscar Grant in the drama Fruitvale Station, boxer Adonis Creed in the Rocky sequel film Creed and main antagonist Erik Killmonger in Black Panther.

Michael's mother, Donna, has lupus. He said:

“My mom’s always smiling even when I know she’s not feeling her best. She just moved up to Los Angeles a couple months ago, so she’s closer to me now.”

Michael is also involved in the fight to find a cure for lupus and has hosted events to raise funds for lupus research including the MBJAM event which he created in 2017..

Roy Keane

Roy Maurice Keane (Irish football pundit, former coach, and former professional player) has a daughter named Caragh who was diagnosed with lupus in 2021 aged 25.

Caragh says “I changed my life completely on the back of a shock Lupus diagnosis back in 2021. I went from being the Captain of the St Andrews netball team to being unable to move due to extreme joint pain and struggled with other symptoms such as severe alopecia and blistered skin. I had to rely heavily on steroids and immunosuppressants and had to turn down my dream teaching position at the time. At twenty five years old I thought that my life was over. I could not accept this fate I she started researching everything I could about health and discovered the vital link between diet, inflammation and gut microbiome”.

Teddi King

Teddi King (September 18, 1929 - November 18, 1977) was an American jazz and pop vocalist. In the 1960s, she opened the Playboy Club, where she often performed.

After developing lupus, she managed to make a brief comeback with a 1977 album and with two more albums recorded for Audiophile released posthumously. She died of the disease on November 18, 1977.

 

Lady Gaga

Lady Gaga's Aunt Joan died of lupus complications. In an interview for the Times she was asked if she had been tested for lupus and said: “Yes. but I don’t want anyone to be worried.” She did not actually reveal if the tests were negative or positive. She has since confirmed that her test shows she has ‘borderline’ lupus in an interview with Larry King 2nd June 2010.

Robyn Lawley

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Australian model Robyn Lawley was diagnosed with lupus in 2015, saying it was "the most 'painful' ordeal she’s ever been through".

She went on to say " “I had symptoms towards the end of the pregnancy. It started in the muscles. I couldn’t pick up things very well and I was losing the ability to walk and to talk. I have a super high pain threshold ... I delivered an 11 pound baby ... so when I couldn’t even pick up things, the doctors, at first, didn’t take me seriously.

It wasn’t until my family — my sisters and my mum came over and saw me and said ‘That’s not how Robyn is’. They wheelchaired me off to hospital and that’s when I got checked out [and diagnosed].”

In 2018 Robyn revealed via Instagram photographs that she had a seizure and fell down the stairs at her home. Full story here.

Eddie Levert (O'Jays)

Eddie Levert, the legendary lead vocalist of The O’Jays, is mourning the loss of his youngest daughter, Ryan Levert, who has passed away at the age of 22 following a lengthy battle with lupus.

This is Eddie's third child that has passed away. Gerald passed away in 2006 at just 40 years old, while Sean died in 2008 at 39.

December 2024

Muni Long

Muni Long is an American singer and songwriter who was diagnosed with lupus in 2018.

Her lyrics have been sung by artists like Ariana Grande, Rihanna, Chris Brown, Madonna, Demi Lovato, and countless others. The song Hrs and Hrs written and performed by Muni had over 169.2M video views on TikTok and 109 million views on Youtube..

“Lupus is a stress-related disease, it’s a silent, invisible struggle ’cause you can’t see it. You wake up in the morning and you look just fine, but you really feel like you got ran over by a train. There’s a lot of different things that I’ve experienced with this diagnosis, everything from hair loss to skin rashes. Being in this business is vainglorious, so that affects my output so much. When I feel good, I look good, I produce well. When I feel like crap, and I gotta go out… Even something as small as someone touching my arm, it hurts. But I gotta smile, and I gotta talk to people when I don’t feel like talking.”