LUPUS RELATED NEWS & UPDATES
Latest news from the Lupus Trust
I’m sure you’ve read the fact that the majority of lupus patients are between 15 and 45. This is correct, but lupus can develop at any age and can affect men and children too. Doctors may dismiss lupus if the patient falls outside the 15 to 45 age range and this may lead to even further misdiagnosis.
We're thrilled to announce that actor, Kazy Tauginas, currently starring in Equalizer 2, is heading up the Lupus Awareness month campaign for the Lupus Trust this year. He has given us permission to use the photo’s here and has made a teeny video for us, so please feel free to share on all your social media.
Lupus Trust supporter, Kelle Bryan, talks about how she’s had to relearn how to walk and talk after suffering a stroke two years ago
Kelle has just revealed that she is to join Hollyoaks as the character Martine. She said "Two years ago I auditioned for Hollyoaks and was offered the role but I was too poorly to take it".
I doubt there’s a patient in the World with an invisible illness that hasn’t heard the phrase ‘but you don’t look sick’. I’m one of the ‘lucky’ lupus patients in the fact that I rarely look sick. I’ve only ever had one visible rash and that was on my legs otherwise I usually have no outward sign that I’m actually ill.
(Los Angeles, CA) – Actor Kazy Tauginas (“The Equalizer 2”) has announced today that he will be participating in the Walk to End Lupus Now® event organized by the Lupus Foundation of America. The event will take place in Los Angeles on Saturday, September 22nd, bringing communities together to raise money for lupus research, increase awareness, and rally public support for those who suffer from the life-threatening disease.
We live a celebrity obsessed world, just take a look at the number of followers they have on twitter/instagram etc to confirm this, when celebrities speak the world listens. If they wear something or do something all the followers sit up and take notice, hence so many brands want to use a celebrity to promote their products.
People follow the daily lives of these people and feel they know them as friends and so who better to give information about health, aren’t friends and family the people we turn to t ask for advice? Some celebrities promote only themselves and their brand, others have used their high profiles for good and to raise awareness of various causes and illnesses.
One of the things people say most often when they see you is ‘how are you’, an innocent enough question to most people, but when you have a chronic illness are they asking exactly how you are or just being polite? How many people want the full low down of how we’re actually feeling?
My stock answer, even with people I know well, is ‘Oh I’m fine thanks’ and I’d be pretty sure a lot of other people with chronic illnesses are saying the same thing. So why do we give this answer?
The news comes from a rheumatologist from the University of Alberta who believes that symptoms such as chronic fatigue, cognitive impairments and muscle pain can be linked to patients who have been implanted with mesh devices.
Jan Willem Cohen Tervaert, director of the Division of Rheumatology explains.
“In my practice, I studied 40 patients who had mesh implants and found that almost all of them had symptoms such as chronic fatigue, cognitive impairment known as “brain fog,” muscle and joint pain “fibromyalgia,” feverish temperature, and dry eyes and dry mouth,” Tervaert said.
Model Robyn Lawley has shared shocking photographs of the injuries she suffered following a horrific fall down a set of stairs, earlier this year.
The 29-year-old, who was diagnosed with Lupus in 2015, had a seizure nearly two months ago, falling seven feet down the staircase at her New York home, landing on her face.
My story is on this website and if you’ve read it you will know that it took me over 4 years to get a diagnosis of lupus. In the end it was sheer luck that my GP got fed up of seeing me and referred me to a rheumatologist, who happened to be Professor David D’Cruz (a rheumatologist with a special interest in lupus, now at the Louise Coote Lupus Unit, London).
